February 1, 2012
Houston, We Have a Problem …
My wife is a maniacal exerciser. Three days a week at the gym, weights and cardio; two days a week, Pilates; Saturday, walk on the beach with a girlfriend; Sunday, walk on the beach with me. Although she comes from a family of women with osteoporosis, she has incredible bone density.
Two weeks ago, we were in Santa Barbara visiting our niece, her husband — a postdoc at University of California–Santa Barbara — and their beautiful five-month old daughter. After a wonderful visit, we took off for a relaxing lunch and stroll in Carpenteria, a few miles south of Santa Barbara on the way home to Los Angeles. We were walking around the main drag when my wife turned to point to a cute shop, tripped, and hit the ground. Her foot immediately began to swell, so we got some ice for the one-hour drive home.
Over the weekend, we treated the foot with ice, heat and liberal painkillers, but by Sunday night we knew that we would need to see an orthopedist for an examination and x-rays. That is when it began to get really painful.
On Monday morning, I contacted the chief of orthopedics at a nearby hospital who had his assistant squeeze my wife in to see someone at noon that day. The administrative assistant who made the arrangements couldn’t have been nicer, and we felt like we were on our way to a resolution. We drove to the new state-of-the-art facility. It was a blustery day, and we had been told that we should drive up to valet parking so we could get a wheelchair to take my wife to the appointment. When we pulled up, the valet said, “Sorry, the garage is full.” I insisted that I needed to help my wife to the appointment; after consulting his colleagues, the valet came back with a ticket and took the car.
We walked to the bank of patient elevators, about a block inside the building, rode to the second floor and arrived to find out they had no record of the appointment. I called the administrative assistant who had made the arrangements, and she got that straightened out: “computer malfunction.” Next was the foot x-ray, with the patient having to navigate two large, heavy doors while holding a “patient notification pager” to get from the waiting room to x-ray. We saw a senior orthopedist, who diagnosed a Lisfranc fracture after the examination and review of the films. He thought an MRI should be done to better see the tendons and determine if a cast or surgery would be best. He wrote the order but said we would get a call in a day or two after the authorization was obtained.
By Wednesday, we hadn’t heard from the office and called — we were told they had the request but only one person in the office was authorized to interact with insurance companies, and she was out. Needless to say, after two additional days of pain and essentially no treatment, my wife was outraged. The office said they would see what they could do and would call us back. We called again on Thursday, and they said that the “insurance person” was still out; the one on the phone said it was not her job, but she would see if she could help and would return our call. When we called Friday morning, after not hearing from anyone on Thursday, we were agitated but glad to hear that the MRI had been authorized. We were instructed to call radiology for an appointment.
When we called, radiology said the earliest appointment was for the following Monday. We were incensed — a painful, though admittedly not life-threatening injury, and another several days before the needed test so that the correct treatment could be started. I again called the chief of orthopedics, and the administrative assistant called back in five minutes to say we could get the MRI at noon that day.
We were grateful, and my wife had a friend take her to the test. After it was completed, she asked the technician to please have the radiologist call the orthopedist with the results as soon as they were ready. He stated that the test was not marked “stat” and would be read the following Monday. When my wife went up to the desk to ask the radiology administrative assistant how to get this expedited, the assistant was sitting at the desk, eating lunch, and said, “There is nothing that can be done. It’s not marked stat, and only the ordering doctor can change that.” A final call to the chief of orthopedics, the MRI was read, and it showed not one but two fractures and the possible need for surgery.
No one could make up a story such as this, but it is all too common in our current healthcare system. None of the individuals involved in my wife’s care was hostile, rude or uncaring. They were all working within a system, however, that does not place value on being patient-centric. Like most of our care delivery system, perhaps with “elite” private and academic health centers the poster-children, it is more about “them” than it is about “us” when we are patients. Building beautiful new facilities and having the latest technology has little value when the system forgets why it exists — to provide compassionate, timely, high-quality care for individuals who are in pain, frightened and at the mercy of the system.
By the way, the fact that I was able to “pull strings” to accomplish even what was eventually done is not something of which I am proud. Like any husband, I was willing to do all that I could to make sure my wife was cared for in the best way possible. I am no different from any other husband, wife, son or daughter who wants only the best for their loved one. No one deserves anything less.
We should always remember that as physicians and healthcare workers, we are here to serve patients. As the founder of modern nursing, Florence Nightingale, said more than a century and a half ago: “Apprehension, uncertainty, waiting, expectation, fear of surprise, do a patient more harm than any exertion.”
Apollo 13 returned from moon orbit safely, and I hope we have the wisdom, foresight and ability to work together in teams to rescue our ailing healthcare delivery system.
I look forward to your comments, until next time.
Striving to bring quality to life,
Allen R. Nissenson, MD
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Bill Anderson said,
February 1, 2012 @ 2:34 pm
Alan, sounds a lot like the system in the UK, or like many HMOs in this country. They take on a life of their own, and as you commented, lose track of why they’re there.
I enjoy your blog.
Allen Nissenson said,
February 1, 2012 @ 2:44 pm
Thanks for the comment, Bill. Very frustrating despite so many well-meaning people.
Jonathan Philipson said,
February 7, 2012 @ 1:23 pm
Allen, What a nightmarish system for something that could have been taken care of so much more efficiently. I often wonder if things would improve if the CEO of that hospital or system was required to spend a day or week as an “undercover boss”. And maybe that’s something that could or should be done in the DaVita community. It would undoubtedly make the quality of care that we provide even better and perhaps make the transition to the dialysis world easier on our patients.
Allen Nissenson said,
February 7, 2012 @ 3:41 pm
Great idea- I just saw that show the other night for the first time and it was impressive.
Tracy Olsen said,
February 23, 2012 @ 3:30 pm
Am wondering if you have read The Healing of America by T.R. Reid, and if you think any aspect of it would work in this country.
I don’t know that I agree with Bill Anderson that HMO’s necessarily provide less than good care. Many years ago, as a young health care professional, my first experience with my own health insurance was Kaiser. I was very impressed by the “mutiphasic”, a series of screening tests. More recently, when my son was in college in San Diego, I signed him up for the Kaiser Plan. I was again impressed by the coordinated care that was provided.
Allen Nissenson said,
February 23, 2012 @ 3:46 pm
You would be interested in the latest NEJM- now online- excellent article about Medicare Advantage plans- showing quality comparison with FFS and comparing quite favorably. In addition, some HMOs already have excellent EHRs- these are key as we move to more integrated care/ACOs.
SAM said,
April 2, 2012 @ 8:46 pm
Allen,
It sounds like when my late husband was at Mayo. Friday night, simple procedure. The removed the catheter on his neck after he went into Kidney failure and then placed it in his chest.
Unfortunatley the radiologist nicked his corotid artery in the process. I walked in and his bed was dripping witth blood. The on-call surgeon would not come in because he was at his dude ranch in AZ and said it will “clot”.
The nurse called 5 times and after 4 hours and emphasizing Jim was on Hepperin he came in.
Jim was forced to have a transfusion the next day.
The surgeon immediately covered his ass by not telling the tranplant team, Later that year (after the staute of limitations were up, the dr.s told Jim that his antibodies were too high and even though my sister was a match (I had given him mine in 2000 no dialysis) and he would never receive a kidney.He died at 46.